More waiting. And worrying.
I came Christmas day, met up with my brother, and came to see my Mom. She was grumpy in that way and okish.
The next morning, my brother left early, and I came to the hospital with my Mom. And sat. She was pretty good during the day. Not super chatty or anything, but ok. That was Sunday. Monday was a little improved. Tuesday was a little improved. The Physical Therapy person walked her to and from her door twice. Good!
Then Wednesday, she just seemed super lethargic. I asked the nurse about it and was basically told nothing to worry about, no problem, just tired.
Thursday, she was even more lethargic. I asked the nurse about it, and was told the same. I asked the doctor about it, and the same. (But I missed seeing the doctors on rounds, maybe I was in the restroom. They come in, say a few words, and leave really fast in a little pack. It would be nice if they'd introduce themselves.)
Today, Friday, she's super lethargic again.
So, this doesn't strike me as fading into the sunset sort of lethargic. This strikes me as drugged lethargic. If I felt like she were fading into death, I'd be sad, but okay. She's 90 and has had a good life. But this doesn't feel like that.
I keep asking.
Yesterday, the Physical Therapist tried to get her up. She would sit up, then stood, but all she wanted to do was sleep. I don't think this is my Mom being depressed or uncooperative or whatever. I think this is her being druggy lethargic.
Today, I caught the doctors on rounds. I explained what I'd seen over the past few days, the increasing lethargy, change from walking on Tuesday to barely sitting or standing yesterday.
They all said the nice stuff I'm sure they're told to say: thank you for advocating. We hear your concern.
They said they'd run some test on her blood for the new drug they're giving her, but that it doesn't cause lethargy.
So here's the thing: they should be concerned that she's grown more and not less lethargic on their watch, no? I don't know if they're over busy, over worked, exhausted, bored by her case, given up on her because she's 90, or what. But they don't seem like they do more than say the words they've been told to say in that meaningless way.
OMG, it's like listening to the administrative types blather meaninglessly in ways that really mean, "we aren't interested in this and aren't doing a thing about it because something else... but we want you to feel placated."
I don't feel placated.
That absolutely does not sound right.
ReplyDeleteI'd keep pestering. Maybe lead with, "I want to know what is going on. This does not seem right."
Over the past year of dealing with medical establishments, I've found that medical people sometimes don't want to tell you what they know, because they don't think you'll understand it, or because it's bad news, or whatever. When you make it clear that you both want to know and are capable of understanding what's going on, they sometimes will give you details.
Oh my goodness, that sounds so *unreassuring*. I hope things have picked up today. <>
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